New Year. New Update. My Hair journey in pictures so far.

Hello! I haven’t written in a while. A lot has gone on since the last time I posted. My life appears to have a constant wave of busyness with a lot happening. But then again, I kinda like my life to be like that and constantly up on my feet; doing activities that I like. I have my goals constantly in mind and I am striving towards that end goal.

Anyways, onto the hair and I shall give you an update. The three pictures above show you what my hair has been like recently. The first two images were from before Christmas, which was a very stressful term for me as I had a lot of projects on at that time and I was working as well. However, recently I finally got my last grade back and it wasn’t good. They were really harsh in the comments and grade. It made me question why I am doing what Im doing and whether its worth it. I had a bit of a cry as soon after I received my mark in front of friend. I had to let it out. I couldn’t hold my emotions any longer. There was an urge for me to pull out my hair and punish myself but I was like Im not going to do that. I had to take it with a pinch of salt and pull past it. Now, I want to prove the teachers wrong. I will take the feedback and take it in my stride to do even better. To show them I do have it takes. I haven’t come this far for nothing.

My hair currently is the last photo on the right and as you can see, there has been an improvement in my hair growth. I am even surprised myself that it has grown this much and it definitely gives me confidence that I can keep up this.

Recently, I discovered a trichotillomania Facebook group which I have now joined and has been such an insight. To hear everyones own stories and help one another out with advice. It has all been inspiring and insightful. Even, I made a post recently sharing the photos above because before new years we all decided to make a resolution and try to be pull free. Of course, we all check in with each other now and again. But, it was so nice and refreshing to speak to everyone on the group and I never shared pics of my hair to a big group of people before. It feels like a weight off my shoulders and now, I don’t feel so afraid of opening up to people about it. Be brave and courageous. Be yourself and most importantly, be happy.

My World Mental Health Awareness Day Revelation

This day has always fallen on 10th October and with that, it has always been a day of revelations.

As every year on every form of social media, various people write posts about the importance of mental health or share their own mental health experiences. Mental Health has always been a delicate subject and needs to be treated the right way for people to truly understand it.

On Mental Health Awareness Day is always eye opening to see every year, because every year you learn something new and your eyes open wider further to the fact of how many people are affected. It brings home the fact that no one is alone in this matter. Everyone is linked and truly connected.

One thing that I always saw on these various posts, was no one posted about trichotillomania. It was always posts about the more common types that were mentioned such as depression, anxiety, eating disorder or even bipolar. All of these posts were heart warming and lovely to read, it was if I was able to get to understand people better regardless of whether I actually knew them or not. On the other hand, I always felt alone. To this day sometimes, I feel like trich is an issue that is rarely talked about and honestly, I think hardly anyone knows what it is. It is an issue that needs to be spoken about and people have more awareness of it to truly understand how it occurs; even what could be done to prevent it not going further. However, this year I finally spotted a post about trichotillomania from a friend on Facebook.

I’m gonna write this because I’ve had a few SDFs and it’s #WorldMentalHealthDay and people need educating about the less-known mental illnesses. LONG POST INCOMING, AND TRIGGER WARNING FOR TRICHOTILLOMANIA.

When I was 11 years old, I had trichotillomania. Most of you probably don’t know what that is – I certainly didn’t. It’s an impulse control disorder where you feel compelled to pull your hair out. It CAN be triggered by depression, which years later I was diagnosed with, but I don’t believe that depression was the reason I was pulling my hair out. It’s a disorder that has had little medical research into it, which means that sometimes people just need to pull their hair out and they don’t understand why.

Quickly, I started developing bald patches. We hear a lot about ‘silent sufferers’, and I have been one as well with other illnesses so to anyone who’s suffering silently my heart truly does go out to you and I hope that in time you’ll be able to talk about it and get the help that you need. But with trichotillomania, there’s no option. You can’t ‘silently suffer’ because you’re developing massive bald patches all over your head, so you have to start making up these pathetic lies as excuses because chances are, no one else in your class will understand. Because I didn’t understand, and I was the one that had it. Luckily the peak time that it was happening was during the winter months, so I was able to wear a hat at lunch/break etc., but (cheeky reference to secondary schools bloody stupid uniform policies here) you couldn’t wear a hat at my school once it got past February, regardless of whether it actually was cold or not. I was terrified. If I heard anyone laughing in the corridor, I’d assume it was about me; if I heard anyone mention the word ‘bald’ or even ‘bold’, I’d assume it was about me. And I couldn’t give an explanation for why it was happening, and to be an 11 year old girl in a new school I can’t even begin to explain how terrifying that was for me. Shout out to 11 year old me for getting through it all.

My point is, just as many others have said today – if you are suffering from mental illness, please talk about it. I know it’s impossibly hard (this status is actually the first time I’ve properly publicly talked about this because it’s something I’ve kept hidden for so long) but people need to be educated, and they need to understand. No matter how well known the illness is, we need to talk about it. Mental illnesses are horrible nasty things that can destroy a person, but they are NOT YOUR FAULT and we need to help others to understand that. Luckily I overcame it with the help of my family and through some YouTubers that talked about their experiences with the illness, and obviously now have a full healthy head of hair which I do get a bit weird about when people touch it so apologies if I’ve ever snapped at any of you about touching it. But if 11 year old me had been in a world where as many people speak about their experiences with mental health as they do today, then I’m sure she would have been a lot happier growing up.

I apologise if any of this was worded/structured weirdly, and if you read until the end then thank you – look after yourselves pals xxx’

As soon as my friend posted this post, a lot of comments and likes flooded in. Some commenting their thanks for talking about this unheard mental health issue and others commented mentioning that they suffered from it as well. It was a revelation in itself and a big breath of fresh air for myself.

My friend who wrote the post is confident, popular, bubbly and really knows herself. So, it was a big surprise to see that she of all possible people actually suffered from trich. There is the well known phrase of ‘don’t judge a book by its cover’, which is true. In actual fact, you really don’t know whats inside everyones books and who everyone truly is. Everyone is unique and special in their own way.

I was thrilled to see that she overcame trich and now, she has a full beautiful head of hair that she always loves to style everyday; show it off to everyone. In turn, it brings me hope. A beacon of hope that overcoming this can be done and the results are so worthwhile. It will be a sight that I don’t want to let go ever again. However back to reality, I still have a long way to climb and I would like to do this for myself. At the end of the day, I would like to come out at the end of that tunnel being a much happier person and as completely me.

Thats the aim and now I just have to continue my journey.

 

My Trichotillomania Experience and Advice to fellow Trichers

1. What is your most early memory of having trichotillomania?
My earliest memories are a bit hazy in regards my first time experience with trichotillomania. One early I remember, it was around the time just before I started secondary school and I was having a maths lesson, which I did a few tests on certain areas such as algebra and long division. I didn’t do as well as I hoped and so, I was frustrated with myself. Also, at home family arguments occurred and so, I felt pretty low. I felt angry, tense and anxious. My hands felt like a big ball of tension and I needed to get rid of it somehow. This is where my hand went up onto my hair and pulled a strand out.
2. Why did you decide to share your personal experiences of trichotillomania on a public platform?
I have kept this in for so long, I felt ashamed to even speak about around family and friends. Only my family know about my trichotillomania, no one else does. I tried to tell my oldest best friend, but since then we havent really been good friends ever since.  Ever since that moment, I realised how little people know about trich and majority of them, never really heard of it. I find that sad to hear and its such a shame in relation to mental health; this is not spoken about much at all. So, i thought the time in the dark is over and that I should share my experience with everyone on a public platform via my WordPress blog. I decided to do this, as a way to help myself and others. So, more awareness and understanding about trich is created. To show to everyone that they are not alone. As for myself, it lifts that years of tension off my shoulders from trying to keep it from people and by doing this, it has shown me to not be afraid anymore; to not fear trich as a big dark secret. I dont mind whoever reads my blog. To be honest, the fact that I am writing my experiences down and publishing them on a public platform is a big step for me. Regardless if anyone takes the time to read my posts, at least my thoughts are out there in the open and with that, I hope there is a steady rise of awareness in regards to trichotillomania itself.
3. What have been your main coping mechanisms when dealing with trichotillomania?
I have gone through a variety of coping mechanisms throughout the years. Ones that work for me, are I currently wear a wig for when i am at uni and then at home, i always wear head scarfs. Its become security blanket for me and constant reminder to not pull my hair. Another one, I went to a hair loss centre in London called Belgravia Centre and they gave me minoxidil, which I would put regularly on my scalp. Instantly every time, my hair roots were stimulated and within a couple of months, I nearly had a full head of hair. One thing I do to motivate myself to have a long term goal e.g. one goal I had was for a show that I was taking on tour with my college in Tossa Del Mar. I think there will be a definite phase of experimenting with various techniques and to see which one works with you. Also, I always have a notebook with me and so I feel an urge coming on I draw or write down my thoughts; or even doodle. So, my hands are constantly busy at all times. Currently, one technique I am using is to have an elastic band around my wrist. So, if I have an urge then I ping the elastic band to hurt myself and so by continuing this, it associates the feeling with the urge, which leads me to not pull my hair.
4. How has your perspective changed upon discovering the online trich community?
My perspective has definitely changed when i discovered the online trich community. It has been very refreshing to know that there are plenty of other people experiencing trich as well as me. Since discovering the online community, I don’t feel so alone as I did before. It has been really refreshing to talk to other trich sufferers and hear their stories with trich. It lifts a burden that I thought I was carrying before with knowing I had trich because from what I read on trich and how there is a small amount of people who suffer with it. There isn’t a big ball of tension anymore and now, I walk less afraid and more myself again. This is thanks to discovering the online trich community.
5. What is your number one tip for other sufferers of trichotillomania?
Find techniques that suit you and your day to day routine, which can be beneficial for you to help overcome trich. It will be a slow start at first with a few rocky moments, but the more you use the techniques that benefit you and the most easier your road to recovery will become. But most importantly, with trich make sure you are doing this because YOU want to help yourself.

An Inspiring and Positive Story: Please have a read.

Have you ever heard of trichotillomania or hair pulling disorder? While it isn’t a rare mental illness (apparently over 1% of Americans live with this disorder), most people aren’t aware of it or other body-focused repetitive behaviours. (BFRBs) According to the Canadian BFRB Support Network, trichotillomania is “the compulsive urge to pull out hair from […]

via One Woman’s Story With Trichotillomania, The Hair-Pulling Disorder — Slay Girl Society

A Trich Update. More ways to divert your urges.

day-in-the-life-of-livingwith-trichIt has been tough ever since I have returned back to university, this term is the term where it counts. Where the majority of the degree mark counts and so, I have to make sure that I do my best to achieve a great result.

Hows is trich you ask? Well, its a constant thing waving around me every time and every day is a challenge to overcome it.

I have found a couple of new things to use to help cope.

  1. Colouring Book – In a lot of shops, there are a wide variety of colouring books whether it be Harry Potter themed or Great British Bake Off themed; even colouring in images as postcards. So, whenever I have an urge I always have a colouring book with me whether it be in my bag at uni or just at home. There is always one nearby. I grab it and colour in for 15-20 mins.
  2. Relaxation techniques – There are many techniques to take up as a way of calming you down and feeling relax. At the moment, the one that has been helpful for me is when you sit in neutral position and then, you breathe in for 4 then out for 8 seconds. Continue that for 5 mins and then, increase the amount you breathe in/out. Do this until you feel completely relaxed.
  3. Word/Letter Poster – Think about what you would like to say to yourself as helpful yet effective words of encouragement and motivation. Then, type that out and make sure its in bold lettering or even capitalise it handwritten. Once you have done that, put it up on the wall around your room in places that you know you will look during your daily routine. Look at these every day and then, this can be seen as the continuous motivation to inspire you to keep going with overcoming trich. (Simple version, is to remember the words that you would like to say to yourself and to go in front of the mirror once or even twice a day. Look yourself in the eyes and say that to yourself)

Please feel free to try out these methods and see if there work for you. I would love to hear your stories about diverse methods that work for you in regarding to trichotillomania.

 

Back to Uni: Another challenge for my Trichotillomania.

Im back at university now. So, back to the uni routine. It has been a hard process to adjust to and even though, Im happy to be back in this youthful energy of an environment; but at the same time I wish I was still back home.

Since I have moved back, it has somehow started a bad period for my trich and I hate myself more than ever for letting that happen. There has been this wave of energy, which has made me feel anxious and stressed. This is because I have been non-stop, doing so much that literally it is boggling my brain. Everything overlaps one another. Work, my uni course, extra-curricular activites, house stuff eg making sure everything is paid and up to date and above all, keep track of my health. Making sure I dont get ill. It is alot to take in and there is the feeling of worry constantly over me. Every day is a struggle. Just to make sure that I get through one day at a time.

I was doing well before this bad period struck. I hated myself with the fact that I started again and I feel like all the work I had done before has now gone to waste. Having trich whilst still in education, is a stressful time and hard to really keep trich under control. There have been many moments so far, where I have felt down for maybe not doing well on an essay or a practical assessment, or i have got shouted at whilst at work, hearing negative news from home and even, trying to find friends to catch up with but keeping bailing on you. Yep, this has all happened to me. I am now currently, trying to find ways of picking myself up and begin that good road track again. Fingers crossed.

Another day, another poem to express Trichotillomania thoughts

hair

I’m wading in a messed up heap of my own hair,
pulled out strand by strand
the way I haven’t done since I was much younger;
intrigued with the texture of the hair follicle
when ripped out from the root.

The root of all evil-
I feel like evil personified on several occasions.
The meticulous process of hair-pulling distracts me,
calms me down long enough to prevent self-mutilation.
It stops my tears, helps me breathe. I am relaxed.

Breathe in, hair out.
My coping mechanisms are tearing me apart,
reducing me to this pathetic state-
a depressed and anxious body
that no longer has the strength to sustain itself.

I’m losing myself more and more
with each strand that falls to the floor.

Various ways I try to divert my urges

Everyday is a struggle to try and not give in to the urge to pull my hair. It is like facing constant obstacles that I always have to try and overcome. Every time the urges get triggered for me, is when I am angry, sad, anxious and tense; not really being focused on my day to day activites. I get paranoid and nervous. I don’t really feel myself.

In regards to the urges themselves, my hands seem to have a mind of their own and so, whenever particular feelings are triggered then my hands seem to want to pull my hair. It is like pulling being a way to release those build up negative feelings and to become relaxed; calm again.

I have had trichotillomania for a couple of years now, so along the way there have been periods of time where I had managed to get very close or had a full head of hair. Along the way, you pick up routines or tricks to divert the urges and really make sure that you do not pull your hair.

KEY: Keep your hands occupied and busy.

Example of a few things I do to try and divert my urges:

  • I keep a diary and a plain notebook. I have found writing to be helpful. I write down anything from what ive been up during my day, any thoughts i have or even doodle.
  • Any time I am at home, I always wear a headscarf. So along the years, I have found way to be creative with headwear.
  • I learnt to be the piano throughout the years and so, if I was near the piano  I would play a couple of tunes.
  • Going for a run or a walk. I have found it a great way to clear my hand and get some fresh air.
  • Reading
  • Drawing/Painting
  • Go for dog walks with my dog and play with him as well.
  • Making and cooking meals for people to eat with fresh ingredients.
  • Focus on my university work. Doing research via internet, the library and making thorough notes.

 

What comes with Trichotillomania?

I find this on http://trichconfessions.tumblr.com/ and I feel this describes perfectly, what comes with having Trich.

  • In an age where mental disorders are finally given well deserved study and attention that they should be getting, you’re pretty much left in the dust. Maybe just sit on your hands or play with a ball or something? We don’t know.
  • ‘’Why don’t you just stop pulling your hair?’’ wow Cynthia I never thought about that
  • Good luck finding any awareness, or anyone who’s ever heard of it in general.
  • Good luck finding treatment options and coping devices as well.
  • Ah yes, because of literally no one talking about it, you grow up with your parents being ashamed and disgusted by you. Also, them refusing to understand or believe what you tell them.
  • ‘’You’ve been picking again, haven’t you??’’
  • Having your hair grabbed and checked by your mother.
  • ‘’So why don’t you have any eyelashes?’’
  • No ‘’brows on fleek’’ here
  • Your mother going through wastebaskets and finding hair and questioning you about it. Same with vacuum cleaners.
  • People seeing you pull and asking you why and being quite rude.
  • Fear of someday having another bald spot.
  • Hairdresser terror.
  • Raw eyes where your lashes should be and bleeding where your pubic hair should be.
  • Lifesaving bangs.
  • NOT BEING ABLE TO GET THAT /ONE/ EYELASH AND PULLING YOUR EYELID UNTIL IT GETS RAW
  • ok it’s just a pet peeve of mine but I really hate those edits people do of celebrities or just people in general where they edit off their eyebrows. I know it seems harmless to people, but for someone like me it’s basically just saying. ‘’Look at what an ugly freak you are in society’s viewpoint.’’
  • The shame beanie when you can’t stop pulling
  • Having new bleeding each time you go to the bathroom because you just can’t stop pulling ingrown hairs for some reason
  • Having a ‘’gross’’ condition that can in no way be sugar coated or romanticized as in any way beautiful, so no one talks about it.
  • Once again the shame from having a ‘’gross’’ condition.
  • Why are there so many hairballs everywhere did I do this
  • The last time I had a bald spot was when I was about eleven or twelve I think?? But I couldn’t go into public without a bobby pin pulling hair over it and my mom was so upset the entire time I had it. It wasn’t just the fact of the shame of what it looked like. It got sunburned and there were open sores ok.
  • WHEN NO PENCIL, STENCIL OR WAX SET WILL GIVE YOU NATURAL LOOKING BROWS
  • Trichotillomania is a nightmarish condition and the suffers get little to no awareness or help.
  • All the those who suffer from it are beautiful and deserve better.

Not to mention if you try to look ‘normal’ like draw on eyebrows, glue on fake lashes, shave your head, wear wigs, wear scarves, you always get what I like to call ‘the look’ where ppl are trying to figure out what the hell is wrong with you and if you’re sick

There are many occasions where I’ve been made fun of by peers for having no eyebrows or eyelashes, and many times I’ve been made fun of in public with no hair

It’s aggravating to hear ‘oh I understand I have the bad habit of biting my nails :/’ TRICH IS NOT A BAD HABIT

When you go awhile without pulling (an everyday struggle honestly) and you finally do and your mom won’t stop telling you how disappointed they are in you

‘You should let your hair grow’ OHHH I DIDNT THINK OF THAT BEFORE!! THANKS!

The awful feeling when you have to tell a parent you pulled too much and you need to shave your head /again/

‘You look better with long hair’

‘Take a girl swimming on the first date!’

‘Haha girls that draw on their eyebrows am I right???!!!’

Being distracted/engrossed in something so much you don’t realize you’re pulling until you’re done and there’s hair all over you

When you have very noticeable bald spots (which take forever to grow even when your head is shaved) and your mom is embarrassed to be seen with you in public and tells you to ‘cover your head its disgusting’

‘Nobody wants a bald gf’

When you pull so hard you bleed and get massive headaches

I could go on forever honestly…But the point will always stand that no matter what trich (or other ppl) throws at you, you’re beautiful. You’re strong. You’re going to be ok xoxo